All the updated news related to eb

All the news related to eb updated in real time

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National News

Gel therapy to treat ‘butterfly skin’ condition welcomed by Irish charity

A charity has welcomed positive reports of a gel therapy that helps treat an incurable skin disease, and is hoping that the Irish Government will make it available if it is approved for use. Epidermolysis bullosa (EB), or “butterfly skin”, is a rare ...

15 Jan 2023 at 12:05

National News

Girl with rare skin disease stars in book explaining disorder to classmates

A schoolgirl who suffers from a rare skin disease has become the cover star of a new book explaining the debilitating illness to her new classmates as she starts school this week. Maria Maciukas, from Dublin, will be waved off by her mother Gunita ...

28 Aug 2022 at 14:58

Northern Ireland

Technicians from England and France to help restore power in Ireland

Technicians from England and France are set to help restore power to homes and businesses across Ireland following Storm Eowyn. Around 278,000 remain without power across Ireland on Sunday evening following record-setting wind speeds. ESB ...

26 Jan 2025 at 17:54

National News

Girl with rare skin disease excited to go to secondary school

A Dublin girl born with the most severe form of butterfly skin is excited as she prepares to go to secondary school. Casey Connors, 12, who lives in Clondalkin, has a daily battle with recessive dystrophic epidermolysis bullosa (EB), ...

23 Feb 2025 at 11:00

Business

Irish banking group given multimillion-euro fine over tracker mortgage scandal

One of Ireland’s biggest banks has been fined almost 100 million euro for its role in the country’s tracker mortgage scandal. AIB Group apologised for the distress and financial losses suffered by customers and described the matter ...

23 Jun 2022 at 13:17

National News

'I was screaming in pain' - Charity calls on Govt to ringfence funding for EB sufferers

An Irish charity is urging the Government to ringfence funding in Budget 2024 to help those living with a rare and incurable skin condition. In a pre-Budget submission called 'Small Ask, Big Impact', Debra Ireland is asking for ...

28 Jun 2023 at 12:55

National News

Cutting-edge medicines hoped to transform treatment of incurable skin condition

The introduction of two new cutting-edge medicines are hoped to transform the treatment of a rare incurable skin condition, a charity has said. Debra, which supports 300 people living with epidermolysis bullosa (EB) in Ireland,...

18 May 2025 at 11:00

National News

Irish people suffering with painful rare condition need mental health aid, charity says

A charity supporting Irish people with a rare incurable condition says sufferers are "literally crying out" for mental health support. That's according to the CEO of Debra Ireland, Jimmy Fearon, who made the call on behalf of ...

07 Feb 2023 at 10:02

National News

WATCH: Mum with fear of heights abseils from roof of Croke Park

A mum with a fear of heights has abseiled from the roof of Croke Park to raise funds for her daughter. Rachel Connors took on the challenge to raise money for Debra, the national charity which supports 12 year old Casey and ...

29 Mar 2024 at 14:59

National News

Wheelchair-user with debilitating skin condition set for charity challenge

A wheelchair-user who has constant pain caused by a rare skin disease is to join a major challenge to help fellow sufferers. Emma Fogarty was born with EB (epidermolysis bullosa), a condition which causes her skin to ...

07 Aug 2022 at 16:15

National News

Colin Farrell to run marathon to support friend with rare skin condition

Actor Colin Farrell has paid a moving tribute to a close friend marking her “miracle” 40th birthday – and revealed he will be running a marathon with her. Emma Fogarty is Ireland’s longest-surviving person battling ...

24 Jul 2024 at 06:00

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